Thursday, May 18, 2017

Oska® Pulse – PEMF for Chronic Pain and Cellular Healing




"I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company."




After reading the testimonies of others about how well Oska® Pulse was working for them,  I was excited when my device arrived.

I had already gotten some background information and this is what I found. Peer reviewed studies show pulsed electro-magnetic field (PEMF) therapy works for a plethora of conditions. And, since I used to write for Sharecare, I was glad to see Dr. Oz  say, “PEMF therapy is FDA-approved to fuse bones and has been cleared in certain devices to reduce swelling and joint pain.”  

How does it work?

The Oska Pulse is a PEMF devise that acts by massaging inflammatory cells causing them to dissipate. It doesn't move and there isn't an electrical current like that of a TENS unit. 

Features

An important feature of the device is that it turns off in 30 minutes after it completes four cycles of different pulse electromagnetic frequencies. You don't have to think about it. When it turns off, it will make three short beeps. You can’t feel it so if you don't hear the beeps, you know its off when the pulsing light it emits during operation is off too. If you find the light distracting, you can put it in a sock. Skin-to-skin contact is not necessary for it to work. 

The shape and size is perfect. It fits nicely in the palm of your hand or cradled on the neck, or if you prefer to set it next to you, put it on the flat side. It works in an eight inch radius of the device, period. 


It comes with instructions on how to use it and illustrations of how to use the strap so you can wear it.

The device has a rechargeable battery, so all you have to do is charge it like you would your cell phone. 



My experience

After three weeks, I noticed for the first time in a long time, I didn't wake up in pain from rolling onto my left shoulder. But, there is more.

I have experienced restless leg syndrome for many years. I even had a sleep study that confirmed significant periodic limb movement (PLM). And while my sleep study results was proof for my husband that I wasn’t purposefully kicking him during the night in retaliation for his snoring and it was a confirmation that I have a contributing factor to non-restorative sleep, this information did not solve my problem. And, neither did the medications to specifically treat PLM; I did not tolerate the side effects. But, that was about to change.

About one month in, I “awakened” with the PEMF device still sitting (unattached) on my left shoulder where I had left it the night before. I hadn't moved one inch! No covers in disarray, no complaints from the spouse. I had not changed a thing in my routine or in my medical treatment. The only thing different was Oska Pulse!

Compliance

The most important thing is using it enough. It won’t work if it stays in the nifty box it came in.

Reduction in inflammation and pain might be immediate. But, if a problem has been long standing, your body may take longer to respond. Many things can contribute to the way our body reacts. As an example, we have different reasons for experiencing chronic pain, or we may have another health problem that contributes to how our body heals

It's important to know that you might feel worse at first. This is because the Oska Pulse PEMF device works to release cellular toxins that have accumulated around inflamed areas, so don’t give up. Do as the instructions say and drink plenty of water, just like you would after a massage. 

The literature says the majority of people see significant improvement in 3 - 4 weeks and difficult cases respond in about 4 - 6 weeks. I am still on my healing journey, but there is a noticeable difference in my shoulder pain and joint range of motion. My periodic limb movement has greatly improved, an effect that was totally unexpected.  I consider myself a more difficult case because I have significant arthritis throughout my body. Knowing this and already seeing improvement, I expect it to get even better with time. 


I give my friend, Oska Pulse, five stars. 


In healing,,Celeste

"Adversity is only an obstacle if we fail to see opportunity."

~ • ~ • ~ • ~ • ~ • ~

Celeste Cooper, RN
Author—Patient—Freelance Writer at Health Central & ProHealth Advocate

Celeste’s Website: http://CelesteCooper.com

Learn more about Celeste’s books at her website or find links here on Celeste's  blog. Subscribe to posts by using the information in the upper right hand corner or use the share buttons to share with others.

All blogs and comments are based on the author's opinions and are not meant to replace medical advice.  


Monday, May 8, 2017

Casting Light on the Shadow of Fibromyalgia: Finding the cause


Radiating the Shadow of Light


As suggested in my article for ProHealth, there is a problem with research on fibromyalgia. It is all over the place. The reason for this is partly due to how research is funded—sad, but true.


Drug Research

Several drugs have been suggested for treating fibromyalgia  but are they helping?


The FDA *Voice of the Patient (October 2014) said:

“According to the polling, nearly all in-person and web participants reported taking or having taken a prescription medication to treat their fibromyalgia symptoms. Prescription drug therapies were described as having widely varying degrees of effectiveness, and many participants noted limited benefits or decreased benefit over time. Additionally, even if effective, many participants described that they could not sustain treatment because they were unable to tolerate their side effects.”

*A polling of FDA approved Lyrica®, Cymbalta®, Savella® and other commonly prescribed medications.

 

Also in 2014, The Cochran Library database said while it seems helpful in those who tolerate it, the number who benefit from Pregabalin (Lyrica) is very small. Only one person in ten will have any benefits. (Pregabalin for pain in fibromyalgia in adults, accessed April 29, 2017) That is underwhelming evidence compared to the reported clinical trials on which the FDA based their approval.


Getting Unstuck

In our books I write about the importance of critical thinking and problem solving, i.e. determining what we think we want or need then go about finding ways to achieve it. But, when we change the goal, or even our interpretation of the goal, so changes the way we get there. Simply masking our symptoms so we can learn to live with it isn’t a lofty goal to me. Instead, we should be looking at the cause, the necessary step to finding a cure. That said, I support any medication, treatment, or therapy you and your doctor work together to find, but we can’t get stuck in thinking that’s all there is. We need to know how to treat fibromyalgia as a disease and manage it as we do diabetes, thyroid disease, etc.

The Biology of Body Matter

I began reviewing research, commentaries, and reports on fibromyalgia in 2001 when I first started writing our book, Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome and Myofascial Pain: The Mind-Body Connection, 2010. And, I have seen evidence in small studies and large that fibromyalgia is biological.


As years pass by, we see a recurring theme regarding the hypothalamus-pituitary-adrenal (HPA) axis involvement in fibromyalgia. And as we advance, we learn more about how this might work. You see, the HPA axis is constantly recalculating based on stress signals from the mind or body. For instance, if it receives feedback that there is an imbalance in the immune system this intricate system activates to restore order. 

Immune Cells

Behm FG, et al. found specific immune cells in FM using a specific method. That is what led to the FM/a® blood test. This finding doesn't necessarily negate previous studies on the HPA response in fibromyalgia. Instead, this and other “Peer-reviewed Medical Publications” (below), support immune system involvement in fibromyalgia, which could be upsetting the body's ability to achieve balance. When we treat the root cause in any disease, it makes the job of the HPA much easier.

Newsworthy Hope for the Future

Dynamic, well-respected scientists and medical research institutions will be collecting data from those of us who have tested positive with the FM/a® blood test. 



“We seek a potential set of explanations for why FM patients have their immunological abnormalities and that is why we have contracted with the genomic facilities at two major university medical centers(University of Illinois and UCLA) so we utilize their immense expertise and databases.” (Dr. Bruce Gillis, personal correspondence)

It’s important that you know this will “Take Time”. This is the first step to help scientists find treatment that is specific to the cause of fibromyalgia.

“Things Take Time (TTT).
Get this engraved on your watch crystal or the back of your cell phone.
The Grand Canyon started as a run-off problem.”
~Jeff Miller, PhD (My co-author)



Participation 


The FM/a® test “Campaign 250” is devoted to answering the basic three questions: Do I have it? What caused it? How do I treat it? If you would like to be one of the 250,0000 participates in this important research, you first need to have the FM/a® test. Start the process at http://fmtest.com/ and contact them if you can’t find answers to any of your questions. They are a wonderful bunch of folks. And, you can read my blog, FM/a® Blood Test – “How To” and My Results, which clearly explains my experience

In hope and healing,,Celeste

Related reading:



Following are downloadable peer-reviewed medical publications: (accessed, 2017)









"Adversity is only an obstacle if we fail to see opportunity."

~ • ~ • ~ • ~ • ~ • ~

Celeste Cooper, RN
Author—Patient—Freelance Writer at Health Central & ProHealth Advocate

Celeste’s Website: http://CelesteCooper.com

Learn more about Celeste’s books at her website or find links here on Celeste's  blog. Subscribe to posts by using the information in the upper right hand corner or use the share buttons to share with others.


All blogs and comments are based on the author's opinions and are not meant to replace medical advice.  

Wednesday, April 19, 2017

EpicGenetics Announces Major Clinical Study to Locate Genetic Markers Unique to People with Fibromyalgia and Explore New Treatment Approaches



EpicGenetics, with the Assistance of Leading Medical Centers, Expands Clinical Study of FM/a® Test to Diagnose Fibromyalgia, Identify Genetic Markers Unique to the Disorder and Explore Direct Treatment Approaches

- Provides Research Gift to the Faustman Immunobiology Lab at
Massachusetts General Hospital/Harvard Medical School to
Support Research on Fibromyalgia Treatments -

In February of 2016, I wrote a blog on the importance of a well-designed study on fibromyalgia, Are Fibromyalgia Researchers on a Common Path?

In June of 2016, I wrote a blog on my personal experience with the FM/a® blood test providing a detailed guideline on how the process worked for me, and my results.

In an article that will be published soon by ProHealth, I write about the chaos surrounding concrete diagnostic criteria and the disparaging consequences.

Breaking News

And now I am excited to write about new research that could very well provide us with a true understanding of a “disease” called fibromyalgia.

I have been waiting for permission to share what you are about to read.

LOS ANGELES – April 19, 2017 – EpicGenetics, a privately held biomedical company dedicated to improving the diagnosis and treatment of fibromyalgia, today announced that it has engaged the University of California, Los Angeles (UCLA)* and the University of Illinois College of Medicine Chicago (UIC). Both university research centers will be sequencing the exomes of patients to improve the diagnosis of fibromyalgia through the application of the FM/a® Test and to allow EpicGenetics to detect fibromyalgia disease-specific gene markers. Additionally, Bruce Gillis, M.D., CEO of EpicGenetics, has made a research gift to the Immunobiology Laboratory at the Massachusetts General Hospital directed by Denise Faustman, M.D., Ph.D., to continue its robust clinical research regarding a direct treatment for fibromyalgia. 

The FM/a® Test is an FDA-compliant blood test that diagnoses fibromyalgia by identifying the presence of specific white blood cell abnormalities that have been documented to exist in these patients. The FM/a® Test accurately and objectively diagnoses this chronic disorder that afflicts millions of men, women and children.


Committment

I have been committed to understanding and educating my peers on fibromyalgia over the past two decades, but I have never been as excited as I am right now. To be part of a study that has the potential to prove fibromyalgia as a disease with definite treatments is probably the pinnacle of my work.

Dr. Gillis Is Committed

About this announcement, Dr. Gillis told me, “We are hoping to finally bring our understanding of fibromyalgia out of the Dark Ages. Millions of women, men and children suffer from fibromyalgia, yet our understanding and acknowledgement of this as a legitimate medical condition is still so limited and has not advanced in a meaningful way in decades. With the clinical efforts being initiated as part of today’s announcement, we hope to finally change this and, ultimately, we are seeking to provide answers and better solutions for people who suffer from fibromyalgia.”

Follow @TheFMTest on Facebook

What is “Campaign 250?”

According to Epicgenetics, Campaign 250 represents the largest and most ambitious study to investigate fibromyalgia’s genetic origins, as well as develop a treatment protocol addressing the underlying biology of the disease.

Download PDF at
https://drive.google.com/file/d/0B6iFloW6MyVwakttOHFGUWpRNkk/view?usp=sharing


Under contract with researchers from both UCLA* and the University of Illinois College of Medicine Chicago, Campaign 250 will conduct Whole-Exome genetic testing on up to 250,000 patients who have received a positive FM/a® fibromyalgia diagnosis. All direct testing costs will be covered by EpicGenetics**. Based upon the findings of this testing and once treatment protocols have received regulatory and institutional approvals, FM/a® Test positive patients will be invited to participate in a fibromyalgia-specific vaccine clinical trial to reverse the biology of fibromyalgia. The vaccine trial will be conducted in cooperation with The Faustman Lab and Dr. Denise Faustman at the Massachusetts General Hospital/Harvard School of Medicine, the clinical trial will seek to alleviate fibromyalgia-related symptoms…

* The David Geffen School of Medicine at UCLA has been engaged to sequence the exomes of research subjects
**The genetic tests will require a $45 administration fee to cover the processing of the test, which is a $2,500+ cost being provided at no charge. 

Participation

I am anxious to see if I carry the fibromyalgia gene and I am honored to participate in providing information that can make a difference in the lives of people all over the world who live with fibromyalgia. I hope you can join me on this next chapter.




“The mighty oak was once a little nut that stood its ground.”
--Unknown


Additional Information:
FM/a® Blood Test – “How To” – My detailed account of the process

In healing,,Celeste

"Adversity is only an obstacle if we fail to see opportunity."

~ • ~ • ~ • ~ • ~ • ~

Celeste Cooper, RN
Author—Patient—Freelance Writer at Health Central & ProHealth Advocate

Celeste’s Website: http://CelesteCooper.com

Learn more about Celeste’s books at her website or find links here on Celeste's  blog. Subscribe to posts by using the information in the upper right hand corner or use the share buttons to share with others.

All blogs and comments are based on the author's opinions and are not meant to replace medical advice.  





Wednesday, April 12, 2017

Images from the Heart: Unfettering Chronic Pain by Celeste Cooper


Treasures come in many forms and can mean different things to different people. When we discover our treasure—a lost picture, a rare doll, a long sought after coin, or a rock—it brings a twinkle to our eye and provides a calm blanket to our soul. Ahhhh, there it is.

[Excerpt] Cooper, C and Miller, J. Broken Body Wounded Spirit: Balancing the See-Saw of Chronic Pain, Spring Devotions edition, One Man’s Junk Is another Man’s Treasure.


A Treasure in Time

 “What we see depends mainly on what we look for.”
~John Lubbock, author of The Pleasures of Life


Unchained and reclaimed—photography speaks

Each day in the Broken Body Wounded Spirit: Balancing the See-Saw of Chronic Pain  series SpringSummer FallWinter offers a photograph meant to inspire new ways for managing the daily challenges we face. So, it’s only befitting to encourage you to do this exercise.

·        Find a favorite photo and name it. You may not remember all the events surrounding the picture, but you will capture how it made you feel.
·        Write a few words about it or assign a favorite quote that reflects your sentiments.
·        Share it on social media or keep it in a personal journal.


In the world of chronic pain and chronic illness, losing our ability to choose is often the tallest hurdle we face. This choice is entirely ours; we should embrace it.  



Metered, measured, and meaningful, light allows me to capture my feelings in the moment. Finding the right settings is a metaphor to finding the balance I need to move forward each day.


In healing,,Celeste

"Adversity is only an obstacle if we fail to see opportunity."

~ • ~ • ~ • ~ • ~ • ~

Celeste Cooper, RN
Author—Patient—Freelance Writer at Health Central & ProHealth Advocate

Celeste’s Website: http://CelesteCooper.com

Saturday, March 25, 2017

Leg Circulation, Skin Cancer and My Second Pump: Another Three?


The first week in January, I had a squamous cell skin cancer removed from the inside of my foreleg. You could nearly drop a marble in the hole when the cancerous tissue was removed. A vertical incision was done so the edges would come together for healing. Unfortunately, it did not stay that way. I developed blisters, sloughing, excoriation, and eventually an open and deep wound.

Healing Stages

Healing with chronic illness

The surgeon asked me if I had other medical problems besides having thin skin, a history of cellulitis, Raynaud's, and idiopathic edema. Other than having Hashimoto’s, fibromyalgia and ME/CFS I didn’t have an explanation, I didn’t have an explanation. I don’t know if I will ever know why my body reacts this way. I do not take a medication that would cause skin thinning, poor healing or easy bruising. I wonder if the immune factors elevated in my FM/a test might play a role. But, whatever it might be, I needed to manage this wound successfully. As a nurse, I knew it was going to take time and careful attention.

Stagnation and movement

I was sedentary with my legs elevated for two months, and it was grueling. I knew the importance of keeping blood and lymph moving and this is a perfect example of why I write about it. Lack of movement was not only detrimental to my leg healing, it also caused my fibro, arthritis, and myofascial pain to flare. I had to find a way to get the blood and lymph moving for my general health and for this leg!

The second heart pump: a win-win motivation spin

In my search I found many ways to keep circulation chugging along like the little engine that could. Most I already knew but none was as motivating as thinking of my legs as a second heart pump. It made it easy to include mindfulness and visualization with movement and help with mind/ body balance.

*These movement strategies are also helpful for restless leg cramping and more.

Dr. Sam Robbins’ You Tube video gives relatable information on how our legs, as a second heart pump, are important to our health. He gives us three valuable exercises that no doubt help with healing. Once I was able to start my daily walk again, my leg wound began to heal at a faster rate.

A plan

So, how did I go about moving while tethered to a chair?

·        Exercise on the hour.
·        Three repetitions. The number three is my start-low and go-slow strategy. Repetition is not my friend because of myofascial trigger points. So when I progress any routine, I increase the frequency, not the repetitions. Maybe that doesn’t work for you, but whatever you prefer, the goal is to stay movement motivated.
·        When up to the bathroom, I swung my leg back and forth and kicked the air while holding onto something. The “pumping” motion helped return blood and lymph back into circulation. Dr. Robbins inspired me with his information on “rebounding”, which works something like bouncing does for astronauts.
·        In the chair, I did leg lifts, bicycle peddling, flexing and extension of my ankle, etc. These are essential elements for those of us with leg circulation problems. 

This has been a great learning experience for me. Sure, I wouldn’t ask to have this happen again, but it did happen. I practice T’ai Chi, but the conscious awareness I now have for my second heart pump has added a new meditative movement that will help all of my leg problems and I hope sharing my story will do the same for you.

“When confronted with challenge,
I discover my inner strength.”

Celeste Cooper,


In healing,,Celeste
"Adversity is only an obstacle if we fail to see opportunity."

~ • ~ • ~ • ~ • ~ • ~

Celeste Cooper, RN
Author—Patient—Freelance Writer at Health Central & ProHealth Advocate

Celeste’s Website: http://CelesteCooper.com

Learn more about Celeste’s books at her website or find links here on Celeste's  blog. Subscribe to posts by using the information in the upper right hand corner or use the share buttons to share with others.


All answers and blogs are based on the author's opinions and writing and are not meant to replace medical advice.  

Saturday, March 18, 2017

Steep Drop-offs: Nagging Pain and Our Sixth Sense by Celeste Cooper


Nagging pain and our sixth sense, are you in touch with your body? Do you listen when your body talks?



  • Listen to what our body has to say.
  • Identify new activities, medication, food, or disrupted sleep pattern that could be contributing to our pain.
  • Surrender to our sixth sense.
  • Know the “yeast beast”.
  • SAM-e?
  • Sort the mail of our mind.
  • Identify and pay attention to perpetuating factors.
  • Keep our candles burning?
  • Know our body and mind stress signs.
  • Surrender is not an option.
  • Hellerwork?
  • Kindness is an antidepressant.
  • Medication safety and reporting.
  • Plan-Implement-reevaluate.
  • Watch out for steep drop-offs.
  • … and much more.


"This, the last of Celeste and Jeff's four seasonal devotions books, may just be the best of all. From its practical suggestions to its inspirational quotes and photos, Spring Devotions offers chronic pain sufferers daily bite-sized, easily digestible tidbits that educate, encourage and empower us to take control of our health and our lives. And as someone who likes to jot down personal thoughts in my devotionals, I especially appreciate the extra space for notes. All in all, Broken Body, Wounded Spirit…: Spring Devotions is a valuable asset for anyone living with chronic pain."
~Karen Lee Richards, Editor-in-Chief, Pro Health

Balancing Chronic Pain in Spring

I thank our readers. It is through your encouragement that I am sustained and lifted up daily. Every time I read a particular quote, a comment from you, a research article or advocacy piece, I think of you!

In healing,,Celeste
"Adversity is only an obstacle if we fail to see opportunity."

~ • ~ • ~ • ~ • ~ • ~

Celeste Cooper, RN
Author—Patient—Freelance Writer at Health Central & ProHealth Advocate

Celeste’s Website: http://CelesteCooper.com

Learn more about Celeste’s books at her website or find links here on Celeste's  blog. Subscribe to posts by using the information in the upper right hand corner or use the share buttons to share with others.

All answers and blogs are based on the author's opinions and writing and are not meant to replace medical advice.  


Celeste's Website

Celeste's Website
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