Sunday, June 24, 2012

KaleidoPain NEWS: Ever Changing Colors of Chronicity, 6-24-12


BALANCING THE TEETER TOTTER OF CHRONIC PAIN:




“To get the true value of joy, you must have someone to divide it with.”
~Mark Twain


My life is more than a waiting period, it is a journey, and how I perceive it and improve upon it is solely up to me.

~Celeste


*Tips for writing your own affirmations
http://thesethree.com/Key_to_Affirmations.html
*Tips on journaling https://thesethree.com/Journaling.html



BLOGSPEAK BY CELESTE

Are your drains clogged? – Lymphatic Massage
http://www.sharecare.com/user/celeste-cooper/blogs/show/are-your-drains-clogged-lymphatic-massage


*Celeste’s Blogspeak Links for May and June now available. http://thesethree.com/Featured_Blog_Links.html




HEALTHY HABITS

In honor of migraine awareness, “Food additives, tyramine, nitrates, Sulfites, sodium benzoate, and msg."
http://www.webmd.com/migraines-headaches/guide/triggers-specific-foods


Mayo Clinic on Meditation: A simple, fast way to reduce stress.
http://www.mayoclinic.com/health/meditation/HQ01070


Nutritional expert Deirdre Rawlings speaks up on Heartburn? Acid Reflux? You Could be Among the 20% of Americans With GERD, Celeste contributing author to her EBook series, Fibromyalgia Insider Secrets: 10 Top Experts.
http://articles.healthrealizations.com/FoodsForFibromyalgia/2012/05/21/Heartburn-Acid-Reflux-You-Could-be-Among-the-20.aspx?SubscriberEmail=celeste@thesethree.com



FEATURING Q&A by Celeste at Sharecare


How are fibromyalgia and chronic fatigue syndrome different?
http://www.sharecare.com/question/fibromyalgia-chronic-fatigue-syndrome-different


How are blood tests used to treat fibromyalgia?
http://www.sharecare.com/question/how-blood-tests-diagnose-fibromyalgia


Can nerve stimulation help fibromyalgia?
http://www.sharecare.com/question/can-nerve-stimulation-fibromyalgia

*Follow all answers by Celeste at http://www.sharecare.com/user/celeste-cooper/answers



INSPIRING MOMENTS: Giving forward momentum a shove


What is spirituality?
https://www.thesethree.com/Spirituality.html



ANNOUNCEMENTS


Don’t miss this issue of Fibromyalgia and Chronic Pain Life from the National Fibromyalgia and Chronic Pain Association, making a difference in our lives. I am happy to report I was the catalyst that connected two of my favorites, Dr. Kevin White and the NFMCPA.
http://www.joomag.com/magazine/fibromyalgia-chronic-pain-lifejun-2012/0648498001339623432


IN THE NEWS


Dr. Jesse Stoff Welcomes More Information About Chronic Fatigue Syndrome.” PR News. Fantastic recognition of IACFS/ME “Chronic Fatigue Syndrome Myalgic Encephalomyelitis: A Primer for Clinical Practitioners.”
http://www.prweb.com/releases/DrJesseStoff/06/prweb9616941.htm


Link directly to the Primer on TheseThree Website,
https://www.thesethree.com/ME_X997.html


The Truth About the Drug Companies by Marcia Angell . Written in 2004, but what has changed? Nothing! If anything, it’s worse, we must ask why, and what can we do?
http://www.nybooks.com/articles/archives/2004/jul/15/the-truth-about-the-drug-companies/


Immune cells gobble up healthy but idle brain cells.
http://www.newscientist.com/article/mg21428675.500



FEATURED ARTICLE


Brainfog
https://www.thesethree.com/Brainfog.html



ROLFING THE RESEARCH


Toussaint LL, Whipple MO, Abboud LL, Vincent A, Wahner-Roedler DL. A mind-body technique for symptoms related to fibromyalgia and chronic fatigue. Explore (NY). 2012 Mar-Apr;8(2):92-8. [A very small single-blind, randomized controlled trial of 44 participants, but only 21 made it to the end. The dropout rate was not indicated in the conclusion of the study, but should be a very important finding to report & skews the findings statement submitted in the abstract. I believe in mind-body strategies for coping, but that is true for ALL chronic illness. The Amygdala is the center of emotions, why this study was done only for FM and CFS means it is not a comprehensive study for mind-body work. Cc]


Lu X, Hui-Chan CW, Tsang WW. 2012. Tai Chi, arterial compliance, and muscle strength in older adults. Eur J Prev Cardiol. [Apr 4 Epub ahead of print]. [Discussed in the book, if you have done T’ai Chi, you understand this is a very gentle form of movement that requires flowing purposeful movement and can be very beneficial. Cc]


*See all featured research for June at https://thesethree.com/Featured_Research.html



BOOK REVIEW


"Trigger Point Therapy for Headaches & Migraines" by Valerie DeLaune. New Harbinger: Oakland, 2008.
A wonderful timeless book for indentifying and treating myofascial trigger points related to migraines. As a patient, RN, author and fibromyalgia expert at Sharecare, I found this book to be particularly helpful in addressing the myofascial component of a common comorbid condition to fibromyalgia and chronic fatigue syndrome. I am particularly impressed with the connection Valerie DeLaune makes with the work of the pioneers to understanding the myofascial Janet Travell and David Simons.
~Celeste



SNEAK PEEK (Cooper & Miller, Healing Arts Press: Vermont, 2010 )


“Understanding and Treating Pain” ©

Pain intolerance happens when you are bombarded by painful stimuli or impulses. As a result, your other body systems start to break down. Severe pain can become so extreme that it can cause vomiting or total decompensation — losing all defense mechanisms and grasp on reality. (Excerpt, Chapter Four)
https://www.thesethree.com/Pain_and_Comorbidities.html

*You can review “about the book” including the Table of Contents of Integrative Therapies…at About the Books http://thesethree.com/About_the_Books_WPCN.html



FEATURED WEBSITE OR BLOG!


Philip Getson, DO, Assistant Professor, Drexel University College of Medicine, Department of Neurology, Philadelphia, PA, discusses thermography and complex regional pain syndrome (CRPS).
http://www.painlive.com/painlive_tv/Dr-Philip-Getson-Discusses-Thermography-and-CRPS



NEWS for YOU!


Shingles: What you should know.
http://www.cdc.gov/vaccines/vpd-vac/shingles/vacc-need-know.htm#get-vaccine



COMMENT CORNER

Celeste you are our hero! When you sit down and want to cry with your pain, feel defeated in its' vast processes, find doubt in your direction please know this: You, Celeste Cooper are literally saving lives. People are killing themselves over these syndromes. People need support. You always need to take care of you first, and never fault yourself for any time outs necessary. However, know that you are on my champion list.

I am so grateful for the many supportive comments that come my way.  It is for each of you that continue to provide what I hope is helpful information.  In healing, harmony and hope, Celeste



POINT TO PONDER

Do I find joy?



Monday, June 18, 2012

KaleidoPain NEWS: Ever Changing Colors of Chronicity, 6-18-12


BALANCING THE TEETER TOTTER OF CHRONIC PAIN:




“People may forget what you said, people will forget what you did, but people will never forget how you made them feel.”

~Maya





“I am reminded that others define me by how I let them in.”

~Celeste
 
 
 
BLOGSPEAK BY CELESTE



Thyroid, what have you done to me now?
http://www.sharecare.com/user/celeste-cooper/blogs/show/thyroid-what-have-you-done-to-me-now

*Celeste’s Blogspeak Links for May and April now available. http://thesethree.com/Featured_Blog_Links.html



HEALTHY HABITS

Recipes for Healthy Living from Nutri-Living.
http://www.nutri-living.com/free-information/recipes.html


The TOP10 things you should know about arthritis
http://www.arthritis.org/aam-top10.php



FEATURING Q&A by Celeste at Sharecare


What are possible complications for fibromyalgia?
http://www.sharecare.com/question/possible-complications-for-fibromyalgia


How is fibromyalgia different from chronic pain?
http://www.sharecare.com/question/how-fibromyalgia-related-chronic-pain#answer_PRD__4f5957b319a419_50972358


How is temperature sensitivity treated in fibromyalgia?
http://www.sharecare.com/question/how-temperature-sensitivity-treated-fibromyalgia


*Follow all answers by Celeste at http://www.sharecare.com/user/celeste-cooper/answers



BOOK REVIEW


Migraine Brain and Bodies C. M. Shifflett the whole package written in very interesting style.

My review at Amazon.com Carol Shifflett does an amazing job of covering every single aspect of migraine. As a migrainuer for 45 years, I have read many books, but this is the first one I have read that covers ALL aspects of migraine from symptoms and triggers to all possible causes, including a myofascial component. Not only is "Migraine Brain and Body" informational, it is a book you won't want to put down. Carol writes with a flare like none other. It is difficult to make any medical book exciting to read, but she has done it. If you have migraines, this is the book for you.



INSPIRING MOMENTS: Giving forward momentum a shove

Running On Empty
By Clarissa Shepherd (printed with permission)



All of us here can understand the feeling of running on empty, no fuel left in our tank, having nothing in reserve to function on. ME/CFS and Fibromyalgia all are the definition of exhaustion. We don't get proper, deep, restful sleep which causes exhaustion as well. Then when life problems come up, we just don't have the type of reserves as a well person does, in order to cope. Stress is very much our enemy. We then, can't get caught up on our rest, and continue to spiral down, this causing a flare which can last days, weeks or months. Its like a vehicle running out of fuel. This same running on empty, effects us emotionally. It can bring us from feeling content to feeling anxious and even to tears within minutes. Most of you are using breathing techniques and taking supplements to rebuild fuel, yet many times life comes at us so hard that we still find ourselves in a flare or in tears. Cont’d in Topics at FB page Fellow Travelers, https://www.facebook.com/groups/Fellow.Travelers/



ANNOUNCEMENTS


TMJ and active myofasical trigger points. Treat those trigger points (TrPs). This short video shows the anatomy.
http://www.youtube.com/watch?v=k0V_-Dxhplg&feature=player_embedded



IN THE NEWS


Living with Pain: Physician Abandonment and Suicide in Florida
http://americannewsreport.com/living-with-pain-physician-abandonment-and-suicide-in-florida-8814494.html#comment-1222


Web MD Avoiding Exercise-Related Migraines. Warming up, knowing your triggers, and staying hydrated are key.
http://www.webmd.com/migraines-headaches/features/exercise-and-migraines?src=RSS_PUBLIC



FEATURED ARTICLE


Neurally Mediated Hypotension in FM and CFID.
https://www.thesethree.com/NMH_in_FM_and_CFID.html



SNEAK PEEK (Cooper & Miller, Healing Arts Press: Vermont, 2010 )

“Journal Writing: An Internal Dialogue” ©

Journaling helps us change negative energy into thoughts of encouragement, which promote the healthy coping strategies necessary to deal with the physical and emotional side effects of FM, CFID, or CMP. (Excerpt, Chapter Three)

https://www.thesethree.com/Journaling.html



NEWS for YOU!


The Train is Moving” at One Agent for Change, asynopsis of the CFSAC meeting last week.
http://agentforchange.blogspot.com/2012/06/train-is-moving.html


Migraine Research Foundation. Directory of Diplomates* in Headache Medicine
http://www.migraineresearchfoundation.org/pdf/Final%20Diplomate%20List.pdf



ROLFING THE RESEARCH


Research to share with your physician. Pick the citation and search the abstract in Google or directly from http://www.ncbi.nlm.nih.gov/pubmed/


Jackowska M, Dockray S, Endrighi R, Hendrickx H, Steptoe A. J Sleep problems and heart rate variability over the working day. Sleep Res. 2012 Feb 7. doi: 10.1111/j.1365-2869.2012.00996.x. [Epub ahead of print]
[HR variability and sleep disturbance have both been noted in FM and CFID, this could put us at a higher risk of cardiovascular disease. cc]


Tanaka Y. Biomarkers of stress and fatigue. Nihon Rinsho. 2012 May;70(5):880-6. "Psychological stress is known to stimulate the autonomic nervous, endocrine, and immune systems. Since chronic stress is associated with suppression of a variety of immune parameters, some immune markers are potentially useful. " [Biomarkers for stress can apply to any disease process and is not specific to CFS. CC]


*See all featured research for June at https://thesethree.com/Featured_Research.html



FEATURED WEBSITE OR BLOG!


Dr. Linda Cheek, MD blog, alternative to pain.
http://alternativetopain.wordpress.com/


You Can Do Anything from Fibro TV, Jen Reynolds.
http://fibrotv.com/2012/06/fibrotv-daily-dose-of-health-and-wellness-episode-3-you-can-do-anything/



COMMENT CORNER on Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome and Myofascial Pain: The Mind-Body connection


“I'm reading your book before I go to sleep and am so so so encouraged by the wealth of information in it. Thanks again for publishing such an informative and useful book.  And also for all the practical solutions that we can apply in our daily living.. Everybody who has fibromyalgia should get their hands on a copy. I w...ant to order another copy for my family doc next to order another book for my family doc next...:-)”



POINT TO PONDER


What mistakes can I learn from?



Sunday, June 10, 2012

KaleidoPain NEWS: Ever Changing Colors of Chronicity, June 10th


by Celeste, RN, author, patient
June 10, 2012


 “When we empower ourselves with knowledge, we own it.
Hold on tight, it's going to be quite a ride.”


 QUOTE AND AFFIRMATION NOOK

“The poor man is not he who is without a cent but he who is without a dream.”
~Harry Kemp Words of encouragement for times of change by Catherine DeVrye, 2004

“I cherish my friend because we stand together looking in the same direction.”
~ Celeste Cooper

*Tips for writing your own affirmations
http://thesethree.com/Key_to_Affirmations.html
*Tips on journaling
https://thesethree.com/Journaling.html


BLOGSPEAK BY CELESTE

A Thief in the Night: Is pain robbing you of love?
http://www.sharecare.com/user/celeste-cooper/blogs/show/a-thief-in-the-night-is-pain-robbing-you-of

*Celeste’s Blogspeak Links for May and April now available. http://thesethree.com/Featured_Blog_Links.html


IN THE NEWS

Migraine Study Participation Encouraged During Migraine Awareness Month
http://ca.finance.yahoo.com/news/migraine-study-participation-encouraged-during-205837446.html

Action Lyme Org. The Diagnostic Standard that we ended up with as a result of this charade: OspA and B are left out...http://www.actionlyme.org/Dearborn_Who_Approved.htm

House cuts two-thirds of Gulf War Illness research
http://www.veteransnewsnow.com/2012/06/04/house-cuts-two-thirds-of-gulf-war-illness-rearch/

Children’s Hospital of Colorado Ordered to Pay $95K in FM Job Discrimination Suit. Spate of Disability & Job Discrimination Wins for ME/CFS and Fibromyalgia Patients. ProHealth
http://www.prohealth.com/fibromyalgia/library/showarticle.cfm?libid=17026


HEALTHY HABITS

Forever Young Nutrition. “How to Avoid Toxins in Food.”
http://foreveryoungnutrition.com/2010/10/16/how-to-avoid-toxins-in-food/?goback=%2Egde_1777807_member_121776388

Andrew Weil, MD. Food Intolerance Best Test! (The importance of nutrition Discussed in Chapter Four of Integrative Therapies for Fibroyalgia, Chronic Fatigue Syndrome and Myofascial Pain: The Mind Body Connection. (Healing Arts Press, cooper & Miller, 2010).
http://www.drweil.com/drw/u/QAA400354/Best-Test-for-Food-Intolerance.html

Vacations vs Staycations: Is Taking a Vacation More than It’s Worth? By Deirdre Rawlings, PhD, ND
http://articles.healthrealizations.com/FoodsForFibromyalgia/2012/04/23/Vacations-vs-Staycations.aspx?SubscriberEmail=celeste@thesethree.com


FEATURING Q&A by Celeste at Sharecare

How can I help my doctor diagnose fibromyalgia?
http://www.sharecare.com/question/how-can-help-doctor-diagnose-fibromyalgia

How can I help my loved one deal with their fibromyalgia-related stress?
http://www.sharecare.com/question/how-loved-deal-fibromyalgia-stress

How do I know if my fatigue is caused by fibromyalgia?
http://www.sharecare.com/question/fatigue-is-caused-by-fibromyalgia

What causes the pain associated with fibromyalgia?
http://www.sharecare.com/question/what-reason-pain-due-fibromyalgia

*Follow all answers by Celeste at http://www.sharecare.com/user/celeste-cooper/answers

BOOK REVIEW

Change is something that occurs when one has to accept chronic illness. We resist it but wouldn’t it be better if we embraced it? Here is a great little book, and easy read but profound in understanding change in our lives.

Who Moved My Cheese by Spencer Johnson, MD. GP Putnam: NY, 1998.


INSPIRING MOMENTS: Giving forward momentum a shove

+Virtual Photo Walks™ https://plus.google.com/#106837773805813749834/posts Virtual tours for those getting outside is difficult, but anyone with accessibility challenges, or physical or mental issues is welcome to join; sometimes it really helps to get out of the house, whether you're doing it virtually or the normal way. :)


ANNOUNCEMENTS

IACFS/ME releases new guidelines for Chronic Fatigue Syndrome.
http://www.news-medical.net/news/20120530/IACFSME-releases-new-guidelines-for-chronic-fatigue-syndrome.aspx

Mayo Clinic. Improving the Recognition and Diagnosis of Fibromyalgia
http://www.mayoclinicproceedings.org/article/S0025-6196(11)60035-9/fulltext?refissn=0025-6196&refuid=S0025-6196%2812%2900299-6


ROLFING THE RESEARCH

Renan-Ordine R, Alburquerque-Sendín F, de Souza DP, Cleland JA, Fernández-de-Las-Peñas C. Effectiveness of myofascial trigger point manual therapy combined with a self-stretching protocol for the management of plantar heel pain: a randomized controlled trial. J Orthop Sports Phys Ther. 2011 Feb;41(2):43-50. Epub 2011 Jan 31
[Yet another study showing MTP therapy shows better results when adjunctive to home stretching. Cc]

Ge HY, Nie H, Graven-Nielsen T, Danneskiold-Samsøe B, Arendt-Nielsen L. Descending pain modulation and its interaction with peripheral sensitization following sustained isometric muscle contraction in fibromyalgia. Eur J Pain. 2012 Feb;16(2):196-203. doi: 10.1016/j.ejpain.2011.06.008.
[This result should be no surprise in light of the stress contraction puts on a muscle when it has myofascial trigger points present, Cc]

Gonzalez-Perez LM, Infante-Cossio P, Granados-Nunez M et al. 2012. Treatment of temporomandibular myofascial pain with deep dry needling. Med Oral Patol Oral Cir Bucal. [May 1 Epub ahead of print].
[Another comorbid condition to FM with a myofascial component that is responding to MTP therapy. Cc]

*See all featured research for June at https://thesethree.com/Featured_Research.html


FEATURED ARTICLE

Constant Complaining: Does It Serve Us Well? by Toni Bernhard, J.D.
http://www.psychologytoday.com/blog/turning-straw-gold/201206/constant-complaining-does-it-serve-us-well


SNEAK PEEK (Cooper & Miller, Healing Arts Press: Vermont, 2010 )

Recognizing Resistance ©

Historically the role of the doctor in the physician-patient relationship has been paternalistic, with the patient dependent solely on the physician’s authority. (Excerpt, Chapter Two).
http://thesethree.com/Communicating.html

  
*You can review “about the book” including the Table of Contents of Integrative Therapies…at About the Books http://thesethree.com/About_the_Books_WPCN.html


FEATURED WEBSITEs OR BLOGs!

Depression is frequently related to chronic illness because of associated losses. with having disorder. We forget as patients that those around us have lost something too. They have lost the person we once were, and in some cases depending on the severity and number of coexisting conditions, the work load increases exponentially for the care giver.

A caregiver can become isolated too, affecting their relationship with the patient and with others. Acceptance is the first step to managing any illness but can be difficult for the patient and the caregiver.
~Celeste

Help your loved one by getting the support you both need. TRANSFORM YOUR CHRONIC LIFE, Caregiver Resources might be helpful for you and your caregiver. http://transformyourchroniclife.com/wordpress/links/caregiver-resources/

Blogtalk Radio Georgia Huston with "Teen Pain Help Foundation" by Coach Marla
http://www.blogtalkradio.com/winninglifethroughpain/2012/06/04/georgia-huston-with-teen-pain-help-foundation?utm_source=BTRemail&utm_medium=ShowReminder

Related Sharecare answers :

Should fibromyalgia be treated differently in teens?
http://www.sharecare.com/question/fibromyalgia-be-treated-differently-teens#answer_PRD__4fd354a7984f76_75554153

What skills can I learn to help my loved one deal with their fibromyalgia?
http://www.sharecare.com/question/what-learn-loved-deal-fibromyalgia#answer_PRD__4f8c41f9626512_62239759


COMMENT CORNER

“This book is empowering.”

Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome and Myofascial Pain: The Mind-Body Connections recommended ready by Dr. Mark Guariglia
http://fibrocarecenter.com/products/


POINT TO PONDER

How will being prepared give me the courage to make the best of it?


SUPPORTING THOSE WHO SUPPORT ME

 and

The many others who share information, support our books, and promote the philosophies of this newsletter.



*Additional Help Links at TheseThree.com http://thesethree.com/Helpful_Links_WXOJ.html


  All blogs, posts and answers are based on the work in Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome, and Myofascial Pain: The Mind-Body Connection by Celeste Cooper, RN, and Jeff Miller, PhD. 2010, Vermont: Healing Arts press and are not meant to replace medical advice. http://www.thesethree.com


  Author of Chapter Five, Living with and Coping Effectively Through Fibromyalgia: Detecting Barriers, Understanding the Clues, in Fibromyalgia Insider Secrets: 10 Top Experts, 2nd Ed. Ebook complied by Deirdre Rawlings, ND, PhD http://www.fibromyalgiainsidersecrets.com/idevaffiliate/idevaffiliate.php?id=121_0_1_59

Monday, June 4, 2012

KaleidoPain NEWSLETTER, Realities and Review: Ever Changing Colors of Chronicity

by Celeste Cooper, RN, author, patient, advocate
June 4, 2012




“When we empower ourselves with knowledge, not even one iota of what learn
the hard way can take it away.  Hold on tight, it's going to be quite a ride.”


  BALANCING THE TEETER TOTTER OF CHRONIC PAIN: Inspiring Quote and Affirmation

“Neither fire not wind, birth nor death can erase our good deeds.” ~Buddha
“Writing poetry is the window to my soul.” ~ Celeste Cooper
*Tips for writing your own affirmations http://thesethree.com/Key_to_Affirmations.html
*Tips on journaling https://thesethree.com/Journaling.html


BLOGSPEAK BY CELESTE

Plumping up our prunes, sinusitis in Fibro and CFID.

*Blogspeak Links for May and April now available. http://thesethree.com/Featured_Blog_Links.html

FEATURED WEBSITES OR BLOGS!
Dr Kevin White, MD, PhD, Fibro Doc, taking a survey, help him collect accurate data at

Sharing the philosophies of Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome and Myofascial Pain: The Mind-Body Connection by Celeste Cooper, RN and Jeff Miller PhD is the American Academy of Pain Management. Their mission is to advance the field of pain management using an integrative model of patient-centered care by providing evidence-based education for pain practitioners, as well as credentialing and advocacy for its members.


HEALTHY HABITS
John Hopkins on the Power of Prayer. (Discussed in Chapter Five of Integrative Therapies for Fibroyalgia, Chronic Fatigue Syndrome and Myofascial Pain: The Mind Body Connection. (Healing Arts Press, cooper & Miller, 2010).

Andrew Weil, MD. Allergy Best Test! (Comorbid Allergy discussed in Chapter One of Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome and Myofascial Pain: The Mind Body Connection. (Healing Arts Press, cooper & Miller, 2010).


FEATURING Q&A by Celeste at Sharecare
How can fibromyalgia be diagnosed if no one knows what causes it?

How do I know if a fibromyalgia support group is right for me?

Am I a good candidate for Tai Chi as therapy for fibromyalgia?

*Follow all answers by Celeste at http://www.sharecare.com/user/celeste-cooper/answers


INSPIRING MOMENTS: Giving forward momentum a shove

Venus Williams, Seven-times grand-slam champion, still learning to live with autoimmune Sjogren's Syndrome and associated severe fatigue, battled into the second round of the French Open on Sunday with a 4-6 6-1 6-3 victory over Argentine Paula Ormaechea. [Rock on Venus!] http://www.abs-cbnnews.com/sports/05/28/12/venus-still-learning-cope-illness


ANNOUNCEMENTS
June is Migraine Awareness month. https://www.facebook.com/events/230665660382933/

Looking forward to what happens at the Chronic Fatigue Syndrome Action Committee, who reports directly to the Secretary of Health and Human Services, Katherine Sebelius under the administrative branch of the United States government.


IN THE NEWS
DASH Diet Cooking voted #1 diet by US News & World Reports because it works! Deirdre Rawlings' passion for holistic medicine was ignited by her success in healing her own high cholesterol, high triglycerides, fatigue problems, sugar addiction, adrenal exhaustion, and food allergies.

Chronic Opioid Therapy: Preparing for Your Appointments, Dos and Don’ts to Help Avoid Problems and Six Opioid Safety Steps.” http://www.painsafe.org/


ROLFING THE RESEARCH
Research to share with your physician. Pick the citation and search the abstract in Google or directly from http://www.ncbi.nlm.nih.gov/pubmed/

The result for botox in treatment of migraine have fallen short of expectation.

Berstad A, Undseth R, Lind R, Valeur J. Functional bowel symptoms, fibromyalgia and fatigue: A food-induced triad? Scand J Gastroenterol. 2012 May 18. [Epub ahead of print] [This could be correlated with LGS, as discussed in our book, is prevalent in many autoimmune disorders. I wish they would have included a C-Sucrose Breath Test in this study.cc]

Demir-Göçmen D, Altan L, Korkmaz N, Arabacı R Effect of supervised exercise program including balance exercises on the balance status and clinical signs in patients with fibromyalgia. Rheumatol Int. 2012 May 12. [Epub ahead of print] [ I am not sure that exercise can improve balance in FM since studies show that balance and proprioception are the result of a CNS involvement and HPA deregulation, or due to the presence of untreated MTPs.. I am not certain why a depression scoring (Beck Depression) would be an equivalent tool for such a study in lieu of known biological changes. CC]

*See all featured research for June at https://thesethree.com/Featured_Research.html


FEATURED ARTICLE
Ehler’s Danlos Syndrome. Symptoms can mimic or coexist with FM and CFID, and the disease can be a perpetuator of MPS. Read more… Ehler’s Danlos Syndrome https://www.thesethree.com/Ehlers-Danlos_Syndrome.html


SNEAK PEEK (Cooper and Miller, Healing Arts Press: Vermont, 2010 )

“It’s Not All in a Name” ©

It’s difficult to find correct terminology for each of the three disorders discussed in this book. Although that may seem trivial to some, the name of a disorder can have a tremendous impact on the way it is perceived and treated.

*You can review “about the book” including the Table of Contents of Integrative Therapies…at About the Books http://thesethree.com/About_the_Books_WPCN.html


COMMENT CORNER
Meshea Crysup. Oh Celeste...kindred spirits gal! In chapter 1 you make my argument for fibroLIFE. I read each line shaking my head, "Yes, yes, yes!" Won't go on and on...just wanted to share this with you and hope it lifts you up as I know such a note would me! Blessings!


POINT TO PONDER
What healthy habit can I exchange for one that keeps me from moving forward in a healthy way?


SUPPORTING THOSE WHO SUPPORT ME
 and
The many others who share information, support our books, and promote the philosophies of this newsletter.

*Additional Help Links at TheseThree.com http://thesethree.com/Helpful_Links_WXOJ.html


All blogs, posts and answers are based on the work in Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome, and Myofascial Pain: The Mind-Body Connection by Celeste Cooper, RN, and Jeff Miller, PhD. 2010, Vermont: Healing Arts press and are not meant to replace medical advice. http://www.thesethree.com/


Author of Chapter Five, Living with and Coping Effectively Through Fibromyalgia: Detecting Barriers, Understanding the Clues, in Fibromyalgia Insider Secrets: 10 Top Experts, 2nd Ed. Ebook complied by Deirdre Rawlings, ND, PhD













Friday, June 1, 2012

Plumping up our prunes, sinusitis in Fibro and CFID

Blogspeak as fibromyalgia expert at Sharecare.

My Website Monthly Feature is on Ehlers-Danlos Syndrome

June is “chronic pain awareness month,” so I am featuring Ehlers-Danlos Syndrome Awareness even though last month is its official awareness month, and May is a busy month, I could not let it go by. There are great number of FM and MPS patients with EDS and I did not want to skip over this most important condition.




Ehlers-Danlos Syndrome (EDS) pronounced, ey-lerz dan-los, is considered a rare disease or condition. The Ehlers-Danlos syndromes are genetically passed from parents to offspring. It is characterized by joint hypermobility, skin extensibility and tissue fragility due abnormal genes that produce atypical proteins that result in imperfection of collagen, which is the protein glue for our tissue.



There are now thought to be six types of EDS. 1) The Classical Type, 2) The Hypermobility Type , 3) The Vascular Type , 4) The Arthrochalasia, 5)The Dermatosparaxis, and 6) The Tenascin-X Deficient.

Resources and more to read at

All blogs, posts and answers are based on the work in Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome, and Myofascial Pain: The Mind-Body Connection by Celeste Cooper, RN, and Jeff Miller, PhD. 2010, Vermont: Healing Arts press and are not meant to replace medical advice. www.thesethree.com




Author of Chapter Five, Living with and Coping Effectively Through Fibromyalgia: Detecting Barriers, Understanding the Clues, in Fibromyalgia Insider Secrets: 10 Top Experts, 2nd Ed. Ebook complies by Deirdre Rawlings, ND, PhD


Celeste's Website

Celeste's Website
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