Wednesday, January 9, 2013
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KaleidoPain NEWS: Ever Changing Colors of Chronicity, containing news for all pain and neuro-endocrine-immune patients, healthcare providers, and caregivers.
“A bird doesn't sing because it has an answer,
it sings because it has a song.”
~ Maya Angelou
CELESTE’s BLOGSPEAK Click here for direct links to more blogs
FEATURED BLOGs or Website
Back exercises in 15 minutes a day by Mayo Clinic. Nice slide presentation
Intersection of science and spirituality. Washington Post
By David O. Wiebers, neurologist/neuroscientist.
The Do’s and Don’ts of Fibromyalgia Caregiving. Find out what to do -- and not do -- to help a person suffering from fibromyalgia. [I was a collaborator for this article. Sharecare and Real Age are meeting the needs of the fibromyalgia community. In healing and hope, Celeste]
FEATURING Q&A by Celeste at Sharecare
Milestone – My 300th answer as fibromyalgia expert on Sharecare. “How do I handle other people's reactions to my fibromyalgia?”
Don’t have a Sharecare account? Just copy and paste the question in the ask a question tool bar at www.Sharecare.com
Stopmold cold mom. A great deal of helpful information regarding mold.
There are 100 million Americans in pain. The Pain Alliance to Implement a National Strategy of which I am privileged to be a part, takes on the charges set forth in the IOM report Relieving Pain in America.
January is thyroid awareness month. Read my article:
IN THE NEWS
Rescheduling hydrocodone from II to III
RE: Docket No. FDA–2012–N–1172Impact of Approved Drug Labeling on Chronic Opioid Therapy; Public Hearing;Request for Comments AGENCY: Food and Drug Administration, HHS...Notice by FDA on 12/19/2012 ID: FDA-2012-N-1172-0001
Dr Stephen Grinstead Speaks Out About the War onDrugs Is Now A War on Pain Patients.
Not on Twitter? Follow my tweets from Celeste Speaks
NEWS FOR YOU!
When pain and disability is life limiting. The Seven Rules
The Seven Rules:
Rule #1 - Know what programs are available.
Rule #2 - If it isn’t in your medical record, it’s not so.
Rule #3 - Provide evidence of how your symptoms obstruct your daily living, and what alterations you have made to survive. Get your documentation into your medical records.
Rule #4 - Hire an appeal attorney that is familiar with chronic pain and invisible illness.
Rule #5 - Don’t assume anything. Making the information available to your physician should be welcome and it helps you track your successes and failures too.
Rule #6 - Brainfog? Get a neurocognitive exam.
Rule #7 - Don’t give up.
ROLFING THE RESEARCH
Research Archives https://thesethree.com/Research_Abstracts.html
Fibromyalgia Syndrome (FM)
Chronic Fatigue Immunodysfunction (ME/CFS)
Myofascial Pain Syndrome (MPS/CMP)
Chronic Pelvic Pain
WHAT OTHER’S ARE SAYING ABOUT OUR BOOKS
Check ranking and report.
Broken Body Wounded Spirit: Balancing the See Saw of Chronic Pain. [Fall Devotions]
The goal of living with any chronic illness is to focus on the living and move the illness to the periphery. This book beautifully collects the wisdom of the author and of the ages as daily exercises to focus on life, growth, and health despite the presence of pain. Best wishes to all who use this book to reclaim life day by day.
- Patricia Geraghty, RNC, MSN, FNP-BC, Sharecare Editorial Advisory Board
Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome,and Myofascial Pain: The Mind-Body Connection
Cecily T. reviewed Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome, and Myofascial Pain: The...
A nurse recommended this to me, as I've had FM for 10 years now. I was really helped by Dr Devin Starlynal's "Fibromyalgia Advocate" and seeing her name associated with this book gave me more assurance there was good information here. The authors write first person stories and more fact focused pieces in a combination that keeps it very interesting. Like Dr. Starlynal's books this does not promote a single theory or cure...Read More
A nurse recommended this to me, as I've had FM for 10 years now. I was really helped by Dr Devin Starlynal's "Fibromyalgia Advocate" and seeing her name associated with this book gave me more assurance there was good information here. The authors write first person stories and more fact focused pieces in a combination that keeps it very interesting. Like Dr. Starlynal's books this does not promote a single theory or cure but shows the range of thinking on these disorders. I had not made the connection with CFS & CMP but it certainly bears out in talking with others. This is a very comprehensive and up to the minute book, wish I had it 10 years ago
BROKEN BODY, WOUNDED SPIRIT: Balancing the See Saw of Chronic Pain, FALL Devotions
Day Twenty-three, I strive to keep my words assenting,so they don’t come back to bite me.~Celeste Topic “You said what?”..........
INTEGRATIVE THERAPIES FOR FIBROMYALGIA, CHRONIC FATIGUE SYNDROME AND MYOFASCIAL PAIN: The Mind-Body Connection
There are many helpful tools to help you in chapter two of Integrative Therapies…, “Communicating Your Healthcare Needs,” including relating symptoms & health history, identifying and explaining aggravating and alleviating factors, in-depth explanation of possible coexisting conditions, how to communicate with all healthcare team members, a Summary Exercise, Medication Log, Symptom Inventory Sheet, Anatomical Diagram of Pain, and Health History Log.
Living in the Theater of the Absurd (Kindle Edition)2012 review By Celeste Cooper
Susan McIntyre gives a well written and empowering account of her personal experiences with pain and fibromyalgia, including many faith-full tips for coping. She writes of the vortex and within minutes you are pulled in with her. She speaks to each of us in an amazing and uplifting way. I chuckled in many spots as I thought she was writing a book about me! Honestly, I am not certain if it is aging with fibro or that we share some inner connection. Spell binding, and I mean that literally.
Do you have a special book that has helped you? Pay it forward by writing a review on Amazon, and send it to me so I can post it in the newsletter. You can contact me through my website, http://TheseThree.com
POINT TO PONDER (Inspired by the daily devotions in Broken Body Wounded Spirit: Balancing the See Saw of Chronic Pain.)
How can I live an enlightened, aware life?
Paying it forward, in pain, for pain, Celeste, RN, author, pain patient/activist, educator, and fibromyalgia health expert
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*This virtual newsletter is for informational purpose only and is not meant as medical advice.