bladder that is constantly on fire, constantly cold extremities, or feel like everything they touch is barb wire, just to mention a few symptoms of invisible illnesses. Syndromes are not seen as real because some people operate on the assumption that if you can’t see it, it isn't so, even some healthcare providers migraines were once attributed to a woman’s frenzied inability to cope with stress.
Newer research into genetic markers will plow under the misconceptions of those who do not share our syndrome. In the mean time, it is up to us to support those who support the research. Orphan disorders of all sorts face the same challenges.
In healing and hope, Celeste Cooper, RN author, patient, activist
All blogs, posts and answers are not meant to replace medical advice. www.thesethree.com