RE: March 27, 2013 correspondence with Dr. Frederick Wolfe Professor KU Med, Wichita and lead author of the The American College of Rheumatology Preliminary Diagnostic Criteria for Fibromyalgia and Measurement of Symptom Severity. [Supported by Lilly Research Laboratories.]
- [Brackets indicate comments which were not part of the original correspondence.]
- PPDC = The American College of Rheumatology Preliminary Diagnostic Criteria for Fibromyalgia and Measurement of Symptom Severity.
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Post Comments: (Notes following)
In due respect, Dr Wolfe did allow a few personal comments on his blog which he did not have to do. He has been respectful of my comments even though he is not in agreement.
In healing and hope, Celeste
Comments are not to replace medical advice and are purely my opinions.
The deleted post contained three reviews of our book and many research citations and other books as an answer to a posted question to me by John Q. at Fibromyalgia Perplex topic Junk Science – Junk Ethics.
Dr Wolfe kindly responded:
Rules about posting and articles:
About comments. We want this blog to be about research and discussions concerning fibromyalgia. To post to this blog you should be a published author, have other academic credentials, or would be welcomed as a discussant in an academic journal. We make these somewhat arbitrary rules to try to exclude the general, non-scientific public. We welcome comments by all scientists and social scientists, not just those who are physicians. This blog is moderated, meaning that the editors decide what will appear. In general, we will not censor on-topic scientific posts provided authors meet the above guidelines. If you don’t fit our guidelines and think you have something to contribute, send the editors an email.
Your last comment is too much like blurb for your book. In addition, a few references might be OK, but not the long list you provided.
Dr Wolfe kindly provided me the published article in Arthritis and Research, Vol. 65, No. 5, May 2013, pp 000–000. DOI 10.1002/acr. Excerpt as follows:
Design and subjects.
A representative sample of the German general population was selected with the assistance of a demographic consulting company (USUMA…)… Data collection … May and June 2012. A first attempt was made at 4,448 addresses, and 2,515 persons (56.7%) participated fully. Reasons for nonparticipation included the following: 3 unsuccessful attempts to contact the household or selected household member (12.9%), the household or selected household member declined to participate (13.7%), or the household member was on a holiday break (1.1%). Furthermore, 0.5% of the participants were excluded because they were not able to follow the interview due to illness, as were 3.3% who refused to finish the interview. To study the adult population, we excluded subjects who were #18 years of age. Three subjects who had missing data for the fibromyalgia diagnosis variables were also excluded. After these exclusions, a total of 2,445 subjects were included in the analysis.
PPDC identifies somatic complaints associated with FM without tying them to the comorbid disorders:
Dr Wolfes email response:
I don't share that concern or agree with you. However, the physician can certainly chose to exclude symptoms of known diseases if she choses. That's why we ask physicians to analyze the symptoms and make a judgement.
Dr Wolfe’s blog response:
You misread the ACR criteria when you write the criteria “define symptoms of several autoimmune disorders to be considered.” The criteria refer to symptoms that are present in humans irrespective of disease. There is no clustering between FM and the diseases and syndromes you cite. FM occurs in all diseases and illnesses, but more often in diseases that cause pain or are worrisome. And it is common in osteoarthritis and back pain syndromes, which are not autoimmune at all.
In addition, the criteria do not ask about specific symptoms; they ask about the burden of symptoms. The long list attached to the criteria paper are presented as examples that physicians ‘might’ consider in assessing total burden.
My response: http://www.cdc.gov/arthritis/basics/fibromyalgia.htm