March certainly went out with a bang for me as a patient and advocate.
“JUNK ETHICS-JUNK SCIENCE” From Dr Wolfe’s FMPerplex Blog
Excerpt from the Behm study (2012):
FM/a® is more than 93 percent sensitive, a sensitivity comparable to the HIV blood test. By comparison the rheumatoid arthritis blood test is only 65 percent sensitive. No medical test is 100 percent accurate.
From Wolfe et al, 2013, Fibromyalgia criteria and severity scales for clinical and epidemiological studies: a modification of the ACR Preliminary Diagnostic Criteria for Fibromyalgia.
“Among the limitations of our study was that we did not evaluate the possibility that patients might have had another disorder that could have caused their pain.”
Dr Wolfe appears to be focused on proving “fibromyalgianess,” or “polysymptomatic distress.” You will be interested to see what Dr. Wolfe has to say about this.
RE: March 27, 2013 correspondence with Dr. Frederick Wolfe Professor KU Med, Wichita
Thank you for letting me know why you are deleting my post. The post was not intended as a promotion of our book, rather, it was in answer to John Q’s question, “How do I know the information we provide is helpful?” My co-author practices as a doctor in psychology and specializes is chronic pain. Our philosophies are based on mental, emotional, physical and spiritual balance for living ones best life when struggling with incapacitating daily pain and bears out in the 2011 IOM report. [Institute of Medicine REPORT “Relieving Pain in America].
The deleted post contained three reviews of our book and many research citations and other books at Fibromyalgia Perplex topic JUNK SCIENCE-JUNK ETHICS.
Dr Wolfe kindly responded:
Rules about posting and articles:About comments. We want this blog to be about research and discussions concerning fibromyalgia. To post to this blog you should be a published author, have other academic credentials, or would be welcomed as a discussant in an academic journal....
Your last comment is too much like blurb for your book. In addition, a few references might be OK, but not the long list you provided.
Dr Wolfes email response: I don't share that concern or agree with you. However, the physician can certainly chose to exclude symptoms of known diseases if she choses. That's why we ask physicians to analyze the symptoms and make a judgement.
Dr Wolfe’s blog response: You misread the ACR criteria when you write the criteria “define symptoms of several autoimmune disorders to be considered.” The criteria refer to symptoms that are present in humans irrespective of disease. There is no clustering between FM and the diseases and syndromes you cite. FM occurs in all diseases and illnesses, but more often in diseases that cause pain or are worrisome. And it is common in osteoarthritis and back pain syndromes, which are not autoimmune at all.
In addition, the criteria do not ask about specific symptoms; they ask about the burden of symptoms. The long list attached to the criteria paper are presented as examples that physicians ‘might’ consider in assessing total burden.
My response on the blog: http://www.cdc.gov/arthritis/basics/fibromyalgia.htm
My comment here: Dr. Daniel Clauw, a co-author of both the PPDCFM and the Fibromyalgia Criteria and Severity Scales for Clinical and Epidemiological Studies: A modification of the ACR Preliminary Diagnostic Criteria for Fibromyalgia study apparently does not agree. He and his co-authors talk a great deal about comorbid disorder in Improving the Recognition and Diagnosis of Fibromyalgia. (Arnold, et al., 2011.) This prompted the title for my previous blog, “Are We Judged by the Company We Keep?”
I will keep any posts... See Are we judged by the company we keep? My correspondence with Dr. Frederick Wolfe
In healing and hope, Celeste
Comments are not to replace medical advice and are purely my opinions.
Arnold LM, Clauw DJ, McCarberg BH; FibroCollaborative. Improving the recognition and diagnosis of fibromyalgia. Mayo Clin Proc. 2011 May;86(5):457-64. doi: 10.4065/mcp.2010.0738. Review.
Behm FG, Gavin IM, Karpenko O, Lindgren V, Gaitonde S, Gashkoff PA, Gillis BS. Unique immunologic patterns in fibromyalgia. BMC Clin Pathol. 2012 Dec 17;12(1):25. doi: 10.1186/1472-6890-12-25.
Bennett RM. Opinion on preliminary guidelines for the clinical diagnostic criteria for fibromyalgia Practical Pain Management, July/August, 2010, Volume 10 (6) pages 76-79
Buskila, D, Neumann, L, Alhoashle, A, and Abu-Shakra, M. “Fibromyalgia syndrome in men,” Seminars in Arthritis and Rheumatism 30, no. 1 (2000): 47–51.
Castro-Sánchez AM, Matarán-Peñarrocha GA, López-Rodríguez MM, Lara-Palomo IC, Arendt-Nielsen L, Fernández-de-las-Peñas C. Gender differences in pain severity, disability, depression, and widespread pressure pain sensitivity in patients with fibromyalgia syndrome without comorbid conditions. Pain Med. 2012 Dec;13(12):1639-47. doi: 10.1111/j.1526-4637.2012.01523.x. Epub 2012 Nov 21.
Cooper, C and Miller, J. (2010). Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome and Myofascial Pain: The Mind-Body Connection. Healing Arts Press: Vermont
Gonzalez B, Baptista TM, Branco JC, Ferreira AS.Fibromyalgia: antecedent life events, disability, and causal attribution. Psychol Health Med. 2013 Jan 17. [Epub ahead of print]
Frederick Wolfe, Daniel J. Clauw, Mary-Ann Fitzcharles, Don L. Goldenberg, Robert S. Katz, Philip Mease, Anthony S. Russell, I. Jon Russell, John B. Winfiled, and Muhammad B. Yunus. The American College of Rheumatology Preliminary Diagnostic Criteria for Fibromyalgia and Measurement of Symptom Severity. Arthritis Care & Research, Vol. 62, No. 5, May 2010, pp 600–610. DOI 10.1002/acr.20140
Fibromyalgia: an INTERVIEW with Dr Frederick Wolfe, University of Kansas School of Medicine. Medical Net News.
Wolfe F, Brähler E, Hinz A, Häuser W. Arthritis Care Res (Hoboken).Fibromyalgia prevalence, somatic symptom reporting, and the dimensionality of polysymptomatic distress: Results from a survey of the general population. 2013 Feb 19. doi: 10.1002/acr.21931. [Epub ahead of print]
Wolfe F, Clauw DJ, Fitzcharles MA, Goldenberg DL, Häuser W, Katz RS, Mease P, Russell AS, Russell IJ, Winfield JB. Fibromyalgia criteria and severity scales for clinical and epidemiological studies: a modification of the ACR Preliminary Diagnostic Criteria for Fibromyalgia. J Rheumatol. 2011 Jun;38(6):1113-22. doi: 10.3899/jrheum.100594. Epub 2011 Feb 1.
For more resources see:
Are we judged by the company we keep? My correspondence with Dr. Frederick Wolfe