tag:blogger.com,1999:blog-3069533709334209690.post7537300783852654574..comments2023-12-01T00:19:28.295-08:00Comments on The Pained Ink Slayer: ”FIBROMYALGIANESS”—Patient Harm: The Facts and the Effects of Fibromyalgia Diagnostic Criteria by Celeste CooperThe Pained Ink Slayerhttp://www.blogger.com/profile/09495729147432131238noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-3069533709334209690.post-87874722980253803722014-11-11T10:38:26.466-08:002014-11-11T10:38:26.466-08:00Many thanks to all who have comments and offering ...Many thanks to all who have comments and offering of support. I hope you will re-post in your groups so we can continue forward momentum. We never know how far away or by how many our voice will be heard.<br /><br />In healing and hope, Celeste<br />The Pained Ink Slayerhttps://www.blogger.com/profile/09495729147432131238noreply@blogger.comtag:blogger.com,1999:blog-3069533709334209690.post-67293412449542151832014-11-10T13:46:25.310-08:002014-11-10T13:46:25.310-08:00THANK YOU, CELESTE!!! You continue to fight for a...THANK YOU, CELESTE!!! You continue to fight for all of us and your grit gives me determination to keep fighting. Thank you for your continuing research and writing to promote the TRUTH. I, too, have been belittled by "specialists" like this one from Duke University. Thank you and bless your heart!<br />Maureen Mark DiOriohttps://www.blogger.com/profile/09026786914948279746noreply@blogger.comtag:blogger.com,1999:blog-3069533709334209690.post-36315610930258294872014-11-10T13:44:03.228-08:002014-11-10T13:44:03.228-08:00THANK YOU, CELESTE! You are right on the money an...THANK YOU, CELESTE! You are right on the money and bless you for digging in and advocating and backing up with research of your own. Your grit gives me determination. I've been treated far too many times by "specialists" like the one noted from Duke University who have belittled me. Thank you, thank you, thank you.<br /><br />Maureen DiOrioMaureen Mark DiOriohttps://www.blogger.com/profile/09026786914948279746noreply@blogger.comtag:blogger.com,1999:blog-3069533709334209690.post-26197356482320501152014-11-08T19:35:40.287-08:002014-11-08T19:35:40.287-08:00Hey Celeste :) You go girl! A couple of years ago,...Hey Celeste :) You go girl! A couple of years ago, just after I moved to MO, I went to a clinic and as the nurse and I were going over my meds and conditions she asked me, "So did are you sure a doctor told you that you that you have such a thing called Chronic Fatigue Syndrome or did you just read that name somewhere?" I was stunned! My symptoms of FM/CFS go back to my teenage years. I've been dealing with all of this for decades. I've seen numerous doctors - traditional and alternative. I've interviewed doctors. I'm a published author re: coping with FM. And here I was being asked such an archaic question! I responded by telling her I had been diagnosed by one of the leading specialists in the field. But I didn't stop there. I just couldn't help myself...I said, "Wow, I did not know there were any dinosaurs like you left!" And then I laughed. She didn't think it was so funny. Too bad! When the doctor came in and I related the exchange to him, he didn't think what she said was so funny. He said she had no right to ask me such a question and he would be speaking to her. He then assured me he believes FM/CFS are real conditions. It's bad enough to feel so crummy but then we have to fight so many in the medical community too! Celeste, thank you for all that you are doing for all of us!Anonymoushttps://www.blogger.com/profile/12683937713033800203noreply@blogger.comtag:blogger.com,1999:blog-3069533709334209690.post-91512295337669743802014-11-08T14:03:44.222-08:002014-11-08T14:03:44.222-08:00AWESOME POST!AWESOME POST!dogkisseshttps://www.blogger.com/profile/15850100666447986887noreply@blogger.com