tag:blogger.com,1999:blog-3069533709334209690.post7658045555358837347..comments2023-12-01T00:19:28.295-08:00Comments on The Pained Ink Slayer: ACR Responds to Inquiry on Fibromyalgia CriteriaThe Pained Ink Slayerhttp://www.blogger.com/profile/09495729147432131238noreply@blogger.comBlogger11125tag:blogger.com,1999:blog-3069533709334209690.post-79668835571737885872016-05-25T14:40:46.125-07:002016-05-25T14:40:46.125-07:00I must say, they have been willing to engage with ...I must say, they have been willing to engage with me. That is a plus. Unfortunately, it hasn't helped my agenda. The Pained Ink Slayerhttps://www.blogger.com/profile/09495729147432131238noreply@blogger.comtag:blogger.com,1999:blog-3069533709334209690.post-8483221052071693702016-05-22T15:26:43.476-07:002016-05-22T15:26:43.476-07:00Yes, very good article! I'm so glad you were ...Yes, very good article! I'm so glad you were able to further communicate with them, and your response is right on!dogkisseshttps://www.blogger.com/profile/15850100666447986887noreply@blogger.comtag:blogger.com,1999:blog-3069533709334209690.post-88078094243233464342016-05-01T12:57:33.839-07:002016-05-01T12:57:33.839-07:00Corrine, TY, my pleasure thanks to the support I r...Corrine, TY, my pleasure thanks to the support I receive from so many. I cannot give medical advice. However, if what is being done isn't working, then it's either not the right diagnosis, or it's the wrong treatment. Bursitis can often be the result of myofascial trigger points pulling on the joint or it can be a misdiagnosis because it is myofascial pain instead of inflammation in the bursa. Piriformis syndrome is another possibility. I would first see a chiropractor, physical therapist, or pain physician that understand how the myofascia works and is away of myofascial treatments, such as myofascial release, Travell and Simons trigger point theray, or active release. Do you have joint hypermobility? I have had bursitis, and ileo-tibial band inflammation because of unstable hip joints, but I also have MPS because of hypermobility. Sometimes it take a multi-modal approach to get things to calm down. I know it sure does for me. My pain doc did a special MRI on my pelvis and found a cyst at S3 (an unusual place to have an epidural. Getting the right treatment in the right place is imperative. All the rest were like finding a needle in a haystack. Voila, epidural at S3, nerve pain gone! And, my pelvic pain too. Still have to have a tune up, but when I think of the number of nights of no sleep... well. The most important is that whoever you choose, make sure they are advanced trained in myofascia. A good physiotherapy PT can sure help you unravel the mess. A good physician that specializes in physiotherapy and rehab might help too, but not all are created equal, some still don't have a good handle on myofascia. Here is a link who will find helpful, I think. Piriformis Syndrome or Sciatica, Is There a Difference?<br />http://www.healthcentral.com/chronic-pain/c/662034/180000/piriformis-syndrome <br />The Pained Ink Slayerhttps://www.blogger.com/profile/09495729147432131238noreply@blogger.comtag:blogger.com,1999:blog-3069533709334209690.post-11049105400537900092016-05-01T12:23:22.465-07:002016-05-01T12:23:22.465-07:00Again, I can't thank you enough for your leade...Again, I can't thank you enough for your leadership, support and being the strong conduit on our behalf that you are. <br /> I seem to be going round & round with the acute bursitis in my hips diagnosis from my Rheumataligist, with series of painful shots that do little to help. Should I be seeing a Neurologist instead? I am so tired of getting no where. I need some direction with hope from a doctor who will listen to me. Any words of advice?<br />~Corrinectravlngrlhttps://www.blogger.com/profile/01395541505325441053noreply@blogger.comtag:blogger.com,1999:blog-3069533709334209690.post-4174198286273280412016-04-21T12:08:28.915-07:002016-04-21T12:08:28.915-07:00Thanks, Celeste, appreciate the answer.
Yes, rep...Thanks, Celeste, appreciate the answer. <br /><br />Yes, replication of studies is so vital for moving the field forward, and so often it seems that never gets done. In this instance, I think it will. <br /><br />Thanks so much for all your informative work, Celeste! ((HUGS))kathrynhttps://www.blogger.com/profile/16819415896159458802noreply@blogger.comtag:blogger.com,1999:blog-3069533709334209690.post-46565952935640506972016-04-21T09:25:26.957-07:002016-04-21T09:25:26.957-07:00Kathryn, there needs to be more studies, those tha...Kathryn, there needs to be more studies, those that replicate the same results. It is a possible biomarker, however, the FM/a test is showing more promise, and small fiber neuropathy could be the result of immune dysfunction, rather like joint changes or organ damage from RA. I have a blog coming up on the FM/a test, and the research has been replicated. The test is now covered by many insurances, including Medicare. The Pained Ink Slayerhttps://www.blogger.com/profile/09495729147432131238noreply@blogger.comtag:blogger.com,1999:blog-3069533709334209690.post-16074440077939102802016-04-20T13:22:57.481-07:002016-04-20T13:22:57.481-07:00Celeste, why is Small Fiber Neuropathy not mention...Celeste, why is Small Fiber Neuropathy not mentioned? It is a diagnostic test, isn't it? kathrynhttps://www.blogger.com/profile/16819415896159458802noreply@blogger.comtag:blogger.com,1999:blog-3069533709334209690.post-54958384653862869042016-04-13T19:56:21.169-07:002016-04-13T19:56:21.169-07:00Truly my pleasure to be a conduit for messages to ...Truly my pleasure to be a conduit for messages to help those who share this journey. I always felt God led me to be a nurse, to care for others because he thought I would be good at it. And, I was, and still am, just in a different way. I have no doubt He knew the plan all along. The Pained Ink Slayerhttps://www.blogger.com/profile/09495729147432131238noreply@blogger.comtag:blogger.com,1999:blog-3069533709334209690.post-20191595212383636282016-04-12T11:36:07.530-07:002016-04-12T11:36:07.530-07:00Thank you for always looking out for us (patients)...Thank you for always looking out for us (patients) and sharing information.Anonymoushttps://www.blogger.com/profile/05781024716072423465noreply@blogger.comtag:blogger.com,1999:blog-3069533709334209690.post-86768470759326352512016-04-08T14:23:53.507-07:002016-04-08T14:23:53.507-07:00My pleasure.My pleasure.The Pained Ink Slayerhttps://www.blogger.com/profile/09495729147432131238noreply@blogger.comtag:blogger.com,1999:blog-3069533709334209690.post-29446358198423065482016-04-07T22:04:21.562-07:002016-04-07T22:04:21.562-07:00Nice post. It like it so much.
Thanks for sharing....Nice post. It like it so much.<br />Thanks for sharing.<br /><a href="http://www.fibromyalgiapatienteducation.info/" rel="nofollow">Fibro Patient Support Organization</a>Anonymoushttps://www.blogger.com/profile/17136767333699105740noreply@blogger.com